Hope for Humans, the first comprehensive Care Center for sufferers of Nodding Syndrome was established in 2012. It became a safe haven where children with nodding syndrome received medical care, rehabilitation, nutritious meals, special education, and personal hygiene support.
Ceaser Okot, the coordinator Hope for Humans says the tool also allows for checking the weight of the child, recording of seizure frequencies, the height of the child and how the affected children relate to each other.
The director of Gulu referral hospital has appealed to the government and donors to help in establishing a special needs education centre for children with nodding syndrome. Dr. Nathan Onyachi told Members of Parliament in Gulu that there are currently only 30 children with nodding syndrome who are pursuing primary education under the normal system.