Her name will go down in history among the pioneers of Palliative care or end of life care in Uganda. She came here at a time when Uganda was faced high mortality to HIV/AIDS and severe pain associated with cancer.
Palliative Care In a Pendemic: L-R Dr Stephen Watiti and Professor Anne Marriman. "Without palliative care I wouldn’t have survived the onslaught of TB, Cancer & Meningitis in 1999." said Waititi who shared this photo.
The access to medicine fraternity in Uganda and most of African countries
continue to pay tribute to Professor. Anne Merriman, the Irish physician who
championed palliative care for the critically ill.
She is credited to have been behind a model that was duplicated for
roll out of palliative care not just in Uganda but in several African countries. Anne Merriman died at her home in Munyonyo on Sunday aged 90.
She was the founder of Hospice
Africa providing palliative care to several African countries including Uganda.
She had hoped to live to see all
African Governments and people providing palliative care for those at home as
well as in hospital. But that dream was cut short as she took her last breath
in Uganda where she has been since 1993.
The Ambassador
of Ireland to Uganda and Rwanda, Kelvin Coulgan in message said Dr Anne Merriman was the
embodiment of Caring and Compassion, and her life is a testament to the vision
of Hospice “palliative care for all those in need in Africa”
“She
worked tirelessly for over 30 years to spread this vision across the continent!
Ar dheis Dé go raibh a hanam” reads the message.
Prossy Nakyanja
, Executive Hospice Africa Uganda said Anne will be missed by all. “Our love
comes from God, and our compassion comes from the example of a Good Samaritan.
Compassion is such an important thing for us, not only in work, but also with
each other" she said.
Dr. Stephen
Watiti, who has worked with Anne Merriman in the fights against HIV/AIDS in
Uganda wrote on his X handle that.
“RIP my
Friend & Mother Dr. Anne Merriman, founder of Hospice Africa Uganda. Glory
to God for a life well lived, serving others. Without palliative care I wouldn’t
have survived the onslaught of TB, Cancer & Meningitis in 1999. Fare well,
your work lives on” said Dr. Stephen Watiti, who has lived with HIV for over thirty
years.
Dr. Anne Merriman’s name was and will
forever be ingrained in the book of some of the individuals that championed for
care and support of persons who were infected with the HIV virus and suffering
from cancer in Uganda.
Many remember that by 1993, Uganda’s
cancer rate was on the increase. Karposi’s Sarcoma, a marker for AIDS, was the
most common form of cancer and treatments such as antibiotics or anti-fungal
agents were scarce and only available for the rich.
Imagine
a world where the only pain relief is paracetamol
Dr. Anne Merriman was fond of that quotation whenever
she was addressing gatherings about the importance of morphine in the
management of the terminally ill cancer patients and those living with HIV/AIDS
in Uganda and elsewhere in Africa.
She once share with this
Journalist. “This quotation is really immense for the Western world. Well they can’t
believe that that could ever happen. But in fact in 1993 in Nigeria when we did
the first study. We met a woman in agony. And the hospital where she had been
for treatment, I had worked in it in the 60’s, it had everything. And now it
had nothing except paracetamol. And I had to let her go home in agony” shared
Merriman.
////Cue In” And that was happening
all over…..
Cue Out……something”////
At the peak of the HIV/AIDS
pandemic in Uganda, Professor, Anne Merriman had just settled in Nairobi Kenya as
the firs medical director of Nairobi Hospice.
She had set up palliative care
services in Singapore.
“And I realized the terrible situation
of people who were going home without any pain control. There was nothing more
that could be done” said Merriman in her characteristic soft tone.
///Cue In “And it was a much
Cue Out….early 1993.”///
The pain for those with infections
was huge and yet there was little hope for most patients. It has equally
been documented that as late as 2000, the strongest pain killer was
paracetamol. Stronger pain killers like
codeine was available only to the rich as it was expensive.
Professor Merriman then approached
the then Health Minister, Dr. James
Makumbi seeking for a policy directive on introduction of simply made oral
morphine.
“Because I said can’t start palliative
care unless I had paid control for severe pain and cancers” she narrated.
Morphine was at the time only
permitted for only cancer pain and yet people with the HIV/AIDS and related ailments
were dying in pain.
“By September 1993, we had imported
morphine. And since then, we have never run out of morphine. At the beginning it
was made in Nsambya hospital, but we have been making it ourselves in the
hospice since 1995,” she revealed.
The preparation of morphine has
since been rolled to other parts of the country. Those initiatives have paid
off by availing affordable morphine to the patients be it those suffering from
different types of cancer or those living with HIV/AIDS. It costs about four
thousand shillings for a two –week pain control for an average patient.
Support Care with Pain care?
Unfortunately in some countries
the use of morphine has been kept outreach to those that need it. Some have
tended to associate it with additives. However Anne Meriman was always quick to
defend its use in Palliative Care insisting that helps the patient and the
family to holistically made the suffering.
///Cue In “The Funny thing is that
….
Cue Out….after they die”///
“Because support care without pain
control is just care. It is very essential and it is very good. But once you
meet a patient in severe pain, you really can’t give them that care”
She shared that she and the colleagues
got a lot of challenges initially because a lot of people thought it was
addictive and some thought they were killing their patients with morphine.
“In fact, our patients lived longer because
they were on pain control. And we even had people go back to work. I had a
policeman who directed traffic on his morphine. And we had farmers going back
to doing their work” she said.
In 1995, the Hospice Africa team were
invited to Mbarara to teach palliative care to medical students at the Mbarara
University of Science and Technology. Hospitals like Kitovu have been administering
morphine mainly for person living with HIV/AIDS.
As she gets laid to rest, the key message
is the need to increase resources in healthcare services so that death is not accompanied
by avoidable pain and other distressing symptoms.
For now , it is widely noted that governments in many countries including Uganda
usually give care at the end of life a low priority compared with preventive
and curative services .
A requiem in her honor will be held in
Nsambya at midday on Wednesday. The body will then be transported to the Hiindu
temple in Kampala for cremation.